Saturday, 26 March 2016

Living with Dementia

Well, many of you that read this article will probably not agree with what you about to read, but the truth sometimes hurts and it has to be confronted. My experience comes from looking after my grandmother who lived to the grand age of ninety-six. The last years of my grandmother’s life was spent in a residential home for people with dementia. Dementia is a chronic and progressive disorder of the brain to function normally and involves symptoms such as visual impairment, memory loss, thinking, problem solving, and language abilities and varies to each individual depending on environmental conditions that may have contributed to the onset of the disorder such as Alzheimer’s disease or a sequence of strokes.  

Now, looking back my grandmother spent around fifteen years possible more doubly incontinent which means she had to wear a nappy for her bladder and bowel functions the same as a baby. At the same time my grandmother never recognized me when I visited her, which I did on a regular basis. Throughout this time period she was often spoon feed again much like a baby. I also noticed many of the other residents (perhaps we should call them patients as we do if they are in a hospital) having to be spoon feed and no doubt were probably doubly incontinent as well. 
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On my many visits to the residential home I got to know some of the other residents (patients), inasmuch as how they were glad to see other people visiting because I was told by the care staff that some of the residents never saw any relatives, perhaps this was because they had out lived them or had living relatives that didn’t care I don’t know, but from my experience it’s not easy to see the possible future and it wasn’t easy for me.

All this happened in a period of twenty-five to ten years ago before the UK government took dementia as a serious growing problem and invested money into research and preventative medication. I knew back then that dementia was a worldwide problem and wondered why governments hadn’t taken it seriously from what I had read on the Internet and why there was no medication available to lessen the effects of dementia for my grandmother.

From my experience the care staff dealing with dementia residents (patients) need to be better trained, paid, and need to be able to cope with residents (patients) that can be overly demonstrative and difficult to deal with on par with mentally ill patients.  We all have a habit of wanting to turn away from things that upset our cosy little world, especially, when we see the possible future for many of us and I know I did, but I was given the responsibility that I couldn’t ignore and I didn’t enjoy even though my grandmother had treated me without any real love for me as she acted as my mother and brought me up from the age of twelve and a half.

Perhaps, God in all wisdom wanted to see how I would react and cope as just another test for me, I don’t know, but seeing a possible future many of us will experience doesn’t make sense to me?

Are you listening,  what are you dreaming?

As Jesus said, “belief is everything.”

In my latest book “It’s Never Too Late” read how dreams do come true, but be careful what you wish for. Understand the secret of greed and you will attain one of the secrets of prosperity. The book will also take you on a journey and explores love, money, luck, and much more.


Hey, Chuck. Did you bring any spending money? Viva la vida loca.

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